Carlin & Friends 1st Annual Fun Run for Congenital Adrenal hyperplasia
June 2017
Hello family and friends! As many of you know, at 4 days old, Carlin was diagnosed with Congenital Adrenal Hyperplasia (CAH). CAH is a rare genetic condition which affects about 1 in 18,000 people and lasts a lifetime. CAH affects the production of major hormones with cortisol being one of them. Cortisol assists our bodies to deal with the stresses that illnesses or injuries put on our bodies. Those with CAH do not produce cortisol so it must be given orally by steroid throughout the day as well as when illness or injury set in to prevent what is called an "adrenal crisis".
We have been lucky enough to find support with another young local boy and his family, who was also diagnosed with CAH as a baby.
In honour of June being CAH awareness month, together we have planned a Fun Run to increase awareness of the disorder and also take the opportunity to raise money for a local charity which Carlin has already benefitted from. All money raised will be donated to Teddy Bears Anonymous and anyone who wishes to make additional donations to Teddy Bears Anonymous will have the opportunity to do so the day of the event.
August 8, 2017
Our first fun run was a huge success! We had more than 200 people register for the event and were able to raise over $23,000 for Teddy Bears Anonymous. Teddy Bears Anonymous is a Saskatchewan charity that provides teddy bears to sick children in local hospitals. To learn more about Teddy Bears Anonymous, please visit http://www.teddybearsanonymous.ca
Our next walk will take place on June 24, 2018. All ages are welcome with kids activities planned!
To register, go to the shop on this website, and select your age group. Prices are as follows:
Adults: $25.00
Youth: $15.00
All registrations purchased prior to June 3, 2018 at midnight, will be guaranteed a free t-shirt. Be sure to select your size when registering. All t-shirts are adult unisex.
ALL AGES WELCOME
Global News Article
September 2017
Looking back on the fun run, we were provided an amazing opportunity to meet other with CAH. I feel it is so important for these kids to know others with the same condition as themselves, as well as for parents to have each other to converse with. No matter the experience, I think we will always have questions for each other as well as need support, whether is be emotional or educational. To show our appreciation for our new friends with CAH, we have decided to rename the walk "Carlin & Friends 2nd Annual Fun Run for Congenital Adrenal Hyperplasia". We hope this includes everyone we have met so far, as well as new friends we might get to meet yet!
To register for this years Fun Run on June 24, please go to the "Register" Tab on the top right hand side of this page, or email mindycase@hotmail.com.
This event requires no athletic abilities. It is purely for fun, exercise and good company. All ages, strollers and dogs on leashes are welcome.
We hope to see you out.
Carlin & Friends 2nd Annual Fun Run for Congenital Adrenal hyperplasia
I am happy to announce that we have another successful Fun Run behind us! We had a wonderful day with family, friends and even strangers! Donations for prizes as well as monetary donations blew me away! We were able to have a silent auction as well a raffle with some free giveaways. The weather tried to scare us away but it ended up cooperating in the end. A big thanks goes out to all our volunteers as well as participants this year. We had 245 people register for the Fun Run, which is a 21% increase in participants since last year. Lets shoot for that next year and we can be up to 300!
We were happy to have Big Dog 92.7, Gainer the Gopher, Teddy Bears Anonymous and the Regina Fire Department join us. The kids enjoyed taking pictures, blowing bubbles at the bubble station and getting their faces painted. Global and CTV News from Regina were on location.
Each year it is exciting to see how all our CAH families grow and change. This event is a wonderful opportunity to speak with others about CAH experience as well as educate those interested individuals about CAH as well.
This year, with all 245 participants, business and personal donations, registration fees, silent auction and raffle money, I am happy to announce that we raised $21,154.64 to be donated to Teddy Bears Anonymous. That is a total of 5288 teddy bears to be given to sick children in Saskatchewan hospitals!! Thank you to everyone!
We have already begun think about next year's fun run which will take place on Sunday, June 23, 2019 at 2:30 pm. Mark your calendars, we hope too see you out again!!! Everyone is welcome, as this is purely for fun. No athletic ability is required.
Carlin & Friends 3rd Annual Fun Run for Congenital Adrenal hyperplasia
With our 3rd Annual Fun Run behind us, along with a few rest days, it’s time for my final post of the year.
Our 3rd year doing this continues to prove to be successful. We were able to raise $11,779.74 this year thanks to registration fees, donations, corporate sponsorships, raffle items, hot dog sale and the online silent auction. That brings our grand total for all 3 years to $56,437.38!!! That is a total of 14,109 Teddy Bears for kids. When we began this event, never in my wildest dreams did I ever expect to raise this amount to money, but I have to say, I am PROUD!
A big thank you goes out to family, friends, strangers and supporters who continue to show compassion and love for not only those with CAH but also our charity of choice, Teddy Bears Anonymous. This also wouldn’t be possible without our huge list of corporate sponsorships, raffle and silent auction donations as well as the food donations we have had to keep you all full and watered. Thank you to all volunteers, family members that listened to my continuous “oh sh*t” moments leading up to the event.
Carlin & Friends 4th, 5th and 6th Annual Fun Run for Congenital Adrenal hyperplasia
Unfortunately due to covid, we weren't able to have our normal big event, but did get together as a family to show our support for patients with CAH and their caregivers. We are happy to be back on June 11, 2023 for our large, bigger than better fun run!! Hope to see you there!
Carlin & Friends 7th Annual Fun Run for Congenital Adrenal hyperplasia
A big thank you goes out to everyone for coming out today! Thank you to everyone who sponsored the event, purchased items in the online auction, bought raffle tickets and just came out and walked with us! Your support means the world and it wouldn’t be possibly without supporters like yourselves.
A few specific thank you I should mention…
… to everyone who came to help set up and hung around after to pack up
… to my parents for helping out and pitching in wherever needed the last few months and for putting arrows out and collecting them afterwards
… to Patsy and Jesse for working the registration booth
… to Marsha and Preston for working the raffle table and keeping everything running smoothly on that end
… to Mikayla, Tim, Khanesia and Allie for looking after face painting
… to Alison Jackson for being our DJ and answering the last minute call of duty for a microphone and speaker
… to Isla Jackson for working our tattoo station
… to Ryan Case to taking pictures
… and to my husband Mike, for putting up with me while this all gets planned
I’m sorry if I am forgetting anyone but if I am, your work and help doesn’t go unnoticed.
Now for our total! We are happy to announce that with all fundraising efforts, we were able to raise $17,384.99. Mike and I have agreed to match that which brings our grand total to $34,769.98!!! This is our biggest total to date and are so excited to present it to STARS Ambulance.
To date, we have raised $91,207.36 for local charities.
And who else noticed the STARS helicopter fly over when we were walking?!
Today marks the official end to Carlin's 7th Annual Fun Run for CAH and what a way to close it out!
We were invited to tour the STARS base, the helicopter and meet the crew on for todays shift.
We spent the morning sitting in the helicopter, asking questions, checking out all the new technology they have and trying on helmets. The kids finished off the visit with an ice cream cone and toy helicopters for all!
We proudly presented our cheque to the crew and took the opportunity for a photo by the helicopter as well.
To top it off, I had mentioned earlier, that Saskatchewan ambulances do not carry the emergency injection required to save Carlin's life, as well as others who are adrenal insufficient. This was extremely stressful, knowing full well, that not IF, but WHEN Carlin needs the injection next, if we need the help of medical professionals, we are on our own. I took the opportunity to ask the nurse on today shift, "Do you carry solu-cortef?" and the answer... "Yep!" Honestly, I could have cried! So! If we need help, we DO have back up. I left with a huge weight off my shoulders and this just goes to say...."NOBODY FIGHTS ALONE!"
